Preparing for Surgery
Information for young people having surgery for Adolescent Idiopathic Scoliosis
Paediatric Spinal Team
Information for young people having surgery for Adolescent Idiopathic Scoliosis
Paediatric Spinal Team
To share key information to help you prepare for your scoliosis surgery.
Why? To enable you to feel more confident and prepared for the journey ahead.
It will cover:
What is Adolescent Idiopathic Scoliosis (AIS)?
Appointments to prepare for your surgery (pre-operative assessment)
Discussing your consent for surgery
Exercises to help improve your movement and strength before surgery
Scoliosis is a condition where the spine twists and curves to the side.
As a result of the twist or rotation of the spine, the ribs or shoulder blades on one side of your body stick out a bit more.
You might notice one shoulder being higher than the other, or that one side of your back or ribs looks a little different. There may also be some asymmetry of your hips.
Scoliosis can happen at any age, but it's most common between the ages of 10 and 15.
Let’s break down what Adolescent Idiopathic Scoliosis means:
Adolescent – Refers to young people, usually aged between 10 and 18
Idiopathic – Means that doctors aren’t exactly sure what causes it. It happens for reasons we don’t fully understand yet
Scoliosis – Term used when the spine curves to the side
If you have scoliosis, you’re not alone. Many young people live with this condition, and there are treatments and support to help you along the way.
You can also find lots of helpful information on the website of Scoliosis Support and Research. They help people affected by Scoliosis by:
Providing a dedicated helpline to call or email for advice, support or just someone to talk to
Provide up to date information on scoliosis and related health matters
Provide online support groups facilitated by a qualified counsellor covering various age groups
Hold patient meetings across the country which include talks from specialists and an opportunity to meet others
We would strongly encourage you to do exercises at home whilst you wait for your operation to help improve your movement and strength before surgery.
This will also improve the speed of your recovery following surgery.
Videos from the spine school to help you prepare:
https://www.nuh.nhs.uk/exercise-videos-spine-school
The pre-operative assessment takes place before you have surgery, it is all about getting prepared for your surgery and making sure you are as ready as possible physically and mentally.
You will have 3 to 5 appointments.
You will meet with your surgeon, spinal nurse specialist and other healthcare professionals, this will give you an opportunity to discuss any questions you may have. They will ask about your health history, any medications you are taking, and any allergies you might have.
You will have some tests done, including blood tests, x-rays, medical photographs, MRSA swabs, and sometimes a lung function test, or a nerve test (SSEP).
It is also a time to talk about any worries you might have and to learn about what will happen before, during, and after the surgery.
The anaesthetic assessment will be conducted by the anaesthetist or the spinal nurse specialist and will include taking a full medical history, blood tests and a medication review.
You will need to have a blood test to check your overall health and blood group. When the needle goes in you might feel a small pinch or sting, but this only lasts a few seconds.
During your medication review the anaesthetist or spinal nurse specialist will:
Go over all the medicines you currently take.
Ask you about any allergies you may have, or if you have had any reactions to medications in the past.
Ask you about any vitamins or supplements you use.
This helps the doctors and nurses take care of you before, during, and after your surgery.
You may need to go for a lung function test, which checks how strong your lungs are. This is done by measuring how much air you can breathe out in one forced breath.
This involves blowing hard into a tube. You will be asked to take a big deep breath and blow out as hard as possible. The machine records how fast and how much air is blown out. The measurements are repeated a few times to get the best values.
You may be given an appointment for SSEP investigation before your surgery.
SSEP stands for Somatosensory Evoked Potential and is a way of testing the nerve pathway that runs between your arms, legs, and brain.
During the test, several small electrodes, which look like small metal disks, will be placed on certain points of your body, like your head, shoulders, neck, back, or legs. You will be asked to either sit or lie down and small electrical pulses will be applied to create a twitch in your hand or toes. Although the pulses can be felt, they aren’t too uncomfortable. The test usually takes one hour.
Please inform us if you have a cardiac pacemaker or defibrillator before your appointment.
Come with clean, dry hair, free from any hair care products.
Wear loose fitting clothing as we need easy access to backs of knees, ankles, wrists, collar bones, and lower part of neck.
During this visit you will meet with healthcare professionals including your surgeon and/or spinal nurse specialist. You will:
Discuss your consent for the surgery
Have your height and weight measured
Be given a prescription for gabapentin
Be given a special wash to use before surgery
Have an x-ray
Have medical photographs taken
Have an MRSA test
The discussion during this clinic is very important. The surgeon needs to know that you have a clear understanding about the surgery and all of the potential risks so you can make the decision that is right for you.
Please ask any questions that you may have at that appointment. You will be asked if you agree (consent) to having the surgery and you will be asked to sign a few forms.
Before your appointment, please take the time to read all the education materials that have been provided to you and especially the section on ‘Surgery’ which contains details about the surgery and the risks.
The information in the materials shared by your healthcare team is not intended to try and discourage you from having surgery but does form a vital part of the consent process to ensure you understand what you are having done and the potential for things to go wrong.
You will be given a prescription for gabapentin to manage post-surgery pain,
You will be provided with a special wash to help reduce infection risk.
If you have acne on your back, the surgeon or spinal nurse specialist may prescribe antibiotics to help it clear up before surgery.
You might also need to have a repeat blood test.
When getting your x-ray, you will need to change into a hospital gown and stand, bend or lie still while a technician takes images of your spine. These x-ray images will show the shape and curve of your spine and will help with surgical planning.
As part of the pre-operative consent clinic, you will need to have detailed photographs taken of your spine. Below are details of why this is an important step, and what to expect.
MRSA (Methicillin-resistant Staphylococcus aureus) is a type of bacteria that can cause infections. This ‘bug’ is on the skin of many people and doesn’t usually cause any problems, but when having surgery, the skin needs to be clear to avoid infection. At pre-assessment you will need to have an MRSA test, which checks if you have MRSA on your skin or in your nose.
The spinal nurse specialist will use a small cotton swab to take samples from some areas of your body, like your armpits or groin. The process takes a few minutes. The results usually take a few days to come back.
During one of your appointments with your healthcare team you will be asked for your permission for your details to be shared with the British Spine Registry (BSR).
Visit www.britishspineregistry.com/patients for additional information.
If you need advice or are concerned about any aspect of care or treatment, speak to a staff member or contact PALS:
Freephone: 0800 183 0204
From abroad: +44 115 924 9924 ext 85412 or 82301
Deaf and hard of hearing: text 07812 270003
Email: nuhnt.pals@nhs.net
Letter: NUH NHS Trust, c/o PALS, Freepost NEA 14614, Nottingham NG7 1BR
Website: www.nuh.nhs.uk
For more information please contact:
Centre for Spinal Studies and Surgery
Queens Medical Centre Campus, D Floor, West Block
Telephone: 0115 924 9924
Choose the appropriate extension number for the waiting list coordinator based on the consultant whose care you are under:
81024 – Rachael Blow (Mr Patel)
88469 – Christine Pickard (Mr Yoon)
86230 – Julie Russell-Laing (Mr Shafafy & Mr Bayley)