Nottingham Complex Mesh Centre
NHS England and NHS Improvement instigated the setting up of Complex Mesh Centres throughout England, as a result of the findings of The Cumberledge Report ‘First Do No Harm’ (2020). We provide specific care for women who have experienced complications after having pelvic mesh surgery for incontinence of urine or pelvic organ prolapse. We are one of nine complex mesh centres set up in England with the aim of providing an excellent multi-disciplinary, one stop service. We are working in partnership with Leicester. The scope of the service is to cover the management of all pelvic mesh complications, outlined in the NHS England specification, with the engagement of the multi-disciplinary team (MDT). We run fortnightly clinics and discuss clinic patients in the MDT on the same day. We have nurse triage, psychology, pain and physiotherapy assessments where appropriate. The MDT work collaboratively to provide high quality specialised care for the mesh patients.
The patient journey
We see women suffering from the complications of pelvic mesh who live in the Midlands. Women are referred to us through either their GP or their local hospital consultant. Each referral is then triaged, assessed and if accepted will be managed through our specially designed multi-disciplinary clinical care pathway.
As specified by NHS England, our aim is to provide individualised, holistic care to each woman, taking an in-depth history and offering a wide range of options for treatment. There are two treatment pathways: surgical and non-surgical. Women can have a combination of both pathways if appropriate. The surgical pathway can range from partial mesh removal through to total removal of the mesh. The non-surgical pathway involves the management of pain, bladder, bowel, prolapse and/or sexual difficulties and psychological support. Every woman’s treatment plan will be different, depending on what she wants and what will benefit her.
Patients will be assessed individually and will be seen by the members of the team that their assessment shows are required. A patient can request to be seen by a specific member of the team.
Telephone Triage
Most patients will have a telephone call from the nurse specialist. During this call the patient will have the opportunity to share their history and their symptoms, as well as to ask any questions of the mesh service team. It’s important for us to know their goals as this information helps us decide on an individual treatment plan.
What to expect from your first appointment
Patients will be asked to attend an appointment at The Treatment Centre on the QMC Campus for their initial face-to-face assessment.
At the first appointment, the patient will see the psychologist and then one of the surgeons plus the consultant in pain management, if needs be. It is not unusual to see other members of the team too during the same appointment. Most patients will have a cystoscopy procedure on their first visit.
Patient Reported Outcome Measures (PROMs)
Patient reported outcome measures are questionnaires about bothersome symptoms. NHS England, along with patient and public involvement have carefully chosen these PROMs to analyse how patients are doing before and after intervention from a mesh service. The intervention can be either medication alteration, physiotherapy, pain management procedure and/or surgery. Completing PROMs is really important. It allows us to assess how a patient is doing, and whether there are any changes that we need to make to each patient’s individual care plan. The completed questionnaires are completely anonymised and will not go against a patient’s wishes when it comes to formulating a treatment plan. No patient details are passed on anywhere else.
Treatment Options
If the problems are related to mesh and dependent on assessment, the treatment options can include mesh removal surgery, pelvic floor physiotherapy, pain management, psychological support and much more.
Investigations
It is likely that patients will need to have some investigations to help form a treatment plan tailored to their individual needs. Some investigations may have already been carried out. It is not necessary to have all investigations.
- Pelvic MRI
- Cystoscopy
- Trans labial ultrasound scan
- Urodynamic Studies
- Bladder scan
Patient Information Leaflets:
Flexible cystoscopy.pdf (baus.org.uk)
Patient involvement
We run a patient involvement group (Focus Group) that meets every 3 months, where women can come together online with members of the mesh team to discuss what they want from the service. The main aim is for patient involvement in mesh service delivery planning. Patient involvement can inform us on what has gone well and what could be improved in the service. We ask group members to feedback on leaflets and we bring guest speakers to talk about topics chosen by the mesh patients.
Focus Group Dates 2024 will be added once we have our new physiotherapist has joined our team.