Cystic fibrosis

Welcome to the East Midlands Cystic Fibrosis Adult CF Centre at Nottingham University Hospitals NHS Trust City Hospital campus (NUH).

Cystic fibrosis (CF) is one of the UK's most common life-threatening inherited diseases. It affects over 8,500 people in the UK with over two million people in the UK carrying the faulty gene that causes cystic fibrosis. This is around 1 in 25 of the population.

Cystic fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food. Each week, five babies are born with cystic fibrosis. Each week, three young lives are lost to cystic fibrosis. Around half of the cystic fibrosis population can expect to live over 38 years, although improvements in treatments mean a baby born today could expect to live even longer.

At NUH care is delivered by a multi-disciplinary team of doctors, specialist nurses, dieticians, physiotherapists and social workers. We provide a mixture of outpatient care, community care (currently the home IV service and physiotherapy), and inpatient care. Inpatients are admitted to Southwell, Fleming or Nightingale wards.

We provide a Home IV service and a 5 day drop-in service for acute problems related to cystic fibrosis outside of clinic times.

Outpatient service

  • Weekly annual assessment clinic

  • Weekly general CF clinic with full MDT input and review

  • Home enteral feeding service with patients NG/PEG feeding in the community

  • Monthly specialist diabetic clinic run jointly with the diabeticians and joint inpatient specialist care for diabetic patients

  • Transplant advice and assessment clinics for patients in the pre-transplant phase

  • Joint care of bilateral lung transplant patients, and also liver and renal transplant with strong links with Newcastle and Papworth transplant units

  • A youth cystic fibrosis clinic

  • Joint care of pregnancies with obstetrics

Contact us

Tel: 0115 962 8059

The nurses are available Monday to Friday from 9.30am to 5.30pm

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NHS Nottingham University Hospitals
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