The National Centre for Lymphangioleiomyomatosis (LAM)

The National Centre for Lymphangioleiomyomatosis (LAM) is a comprehensive clinical service for patients with LAM situated at The Nottingham University Hospitals NHS Trust, Queen's Medical Centre Campus. The service is funded by the Advisory Group on National Specialised Services.

Clinical Services

The LAM Centre provides comprehensive clinical care for patients with LAM including:

• Diagnostic workup of patients with suspected LAM
• Ongoing respiratory care either exclusively at the centre or in partnership with local providers
• Clinical and genetic evaluation of Tuberous Sclerosis Complex (TSC) in patients with LAM and evaluation of LAM in patients with TSC
• Evaluation and monitoring of renal angiomyolipoma
• Surgical assessment and treatment of complications
• Pre lung transplant evaluation and referral

Research

In conjunction with the University of Nottingham, the LAM centre is a hub for clinical trials of new therapies for LAM, evaluation of biomarkers, outcome and laboratory research into the molecular basis of the disease.

Staff

Respiratory Medicine
Professor Simon Johnson	LAM Centre Director and Consultant Physician	Nottingham University Hospitals, Queen's Medical Centre Campus
Dr William Kinnear	Consultant Physician
To be appointed	Respiratory Nurse Specialist
Janet Bee	Centre Coordinator
Thoracic Surgery
Mr John Duffy	Consultant Thoracic Surgeon	Nottingham University Hospitals, City Hospital Campus
Clinical Genetics
Dr Jacqueline Eason	Consultant in Clinical Genetics	Nottingham University Hospitals, City Hospital Campus
Renal Disease
Mr Rupesh Bhatt	Consultant Urological Surgeon	University Hospital Birmingham
Lung Transplantation
Professor Paul Corris	Director of Cardiopulmonary Transplantation	Freeman Hospital Newcastle

European Respiratory Society Treatment Guidelines for LAM

Click here to download the European Respiratory Society guidelines for the diagnosis and management of lymphangioleiomyomatosis

 

Contacts

Administrator

Janet Bee
National Centre for LAM
D Floor, South Block
Queen's Medical Centre
Nottingham NG7 2UH
LAMcentre@nuh.nhs.uk
Tel and Fax: 0115 9709322

Referrals

Professor Simon Johnson
National Centre for LAM
D Floor, South Block
Queen's Medical Centre
Nottingham NG7 2UH
LAMcentre@nuh.nhs.uk

Referrals should be made through a medical practitioner (patient self referrals cannot be accepted).